Author: Lorna (@MSGrrl)
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My love/hate relationship with exercise
Exercise. I do feel better when I am doing it regularly, but every time I stop for an exacerbation, it takes so much out of me to start again.
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Use power for good
$50,000 is a lot of money to us; for big corporations, it’s only a drop or less.
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My life’s quality
In the movie The Bone Collector, Denzel Washington plays a quadriplegic crime scene investigator. As I become more disabled, I have become interested in this story line.
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Turns out, not every MSer is my peep
A few weeks ago I took a call on the MSFriends (MSF) helpline from a “C___” in [state deleted] who was just calling to talk. She was suffering from a migraine because she wasn’t able to take any pain medicine preemptively before she had driven herself to the appointment for her annual MRI and back…
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The good use of my time
Now that I am more disabled, I find that I’d rather spend my limited energy on other things. Like this MSFriends Peer Support Hotline.
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Postscript
Regarding CCSVI, please remember that opinions expressed on this post are my own.
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My world is narrowing
I’m not bringing this up to encourage pity or sympathy. I’m trying to examine and explain it logically and with detachment.
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“I’m melting! melting!”
The first time I experienced MS fatigue, it was exhaustion like I’d never known.
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On to the next endeavor
I have officially abandoned the diet-test. As shallow as it may sound, I’ve decided in favor of the increased quality of life of being able to eat pizza, burritos and ice cream.
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Would I swap symptoms?
She has pain, scrambled cognition, and vision problems; I have bladder problems, poor hand-eye coordination, and decreasing mobility.