I keep thinking I can "cheat" sometimes with my food sensitivities, like you sometimes do when you are following a diet to lose weight. But I had another reminder that one, the diet is helping, and two, I can't cheat. Sigh.
A few weeks ago I had a major bladder issue again, which I haven't had in months. I was discouraged because I thought the progress with my bladder was therefore not due to the diet, like I thought, but simply just my m.s. remitting and now relapsing according to the whims of the disease. And that all this restricting foods was for naught.
I talked to OH about it and had a little cry. Then suddenly I remembered that I had succumbed to the temptation of ice cream the night before. Ah-ha! Maybe that was why.
It was chocolate brownie ice cream, and of that, I'm sensitive to chocolate, sugar, cream and wheat (do brownies have wheat?). I continued to have bladder urgency for over a week after that, but it was worst that first day. And I'm back to having none now.
On my way to acupuncture yesterday I stopped and had my food sensitivities rechecked. I am so happy to report that some of the things I've eliminated I'm no longer showing as sensitive to!
Some of the things I've really missed and can now eat again (in rotation every 4 days or so) are salt, Mozzarella cheese (on spelt pizza crust!!!), rice and corn, tuna and avocado. I am looking forward also to cottage and cream cheeses.
Still no wheat, eggs or chicken. Surprisingly no sweet potatoes, curry, turkey, and now canola oil! Safflower and olive oil are okay now.
I can have sole, black coffee and barley (in my coffee substitute) sparingly. So rotation, rotation, rotation.
My bladder urgency is mostly gone and others have commented that my energy seems up. It's hard to tell, day to day, when changes are so miniscule, so other peoples' comments are so appreciated. I wish I had drastic changes to report, but am cautiously optimistic that this experiment is useful.
In the interest of full disclosure of what it’s like to be a person living with this disease, I have to confess my biggest shame: urinary incontinence.
Wedding is in TEN days!
And now, in the interest of full disclosure of what it's like to be a person living with this disease, I have to confess my biggest shame: urinary incontinence.
I know that it's a common problem with M.S. but my mom was asking me about my preferences for something to do with the wedding yesterday, and I said "All I care about is not wetting my pants." You might think that is funny, but it is my biggest fear. And my experience with Depends™ and Poise™ pads is that they aren't always enough, and they are uncomfortable and ugly besides.
I was in a group of MSers a few years ago and one patient was brought to tears lamenting bowel incontinence that rendered her incapable of wearing thong underwear anymore. And I confess that I do sometimes comfort myself with that as evidence things could be worse for me.
But I am only 42 years old. There was a time when I looked at urinary incontinence as proof that things could be worse from where I was.
I think, at some point, I'm going to have to investigate self-catheterization.