- Nasturtium leaves, flowers and pods are all edible
- Lede is a real word, as in “Way to bury the lede, Amy!” Apparently that’s the noun! I’ve been imagining that phrase wrong.
- Weight-bearing describes a person who is able to carry their own weight with at least one leg
- Three inputs to your brain for balance: sight, auditory (vestibular), and proprioception, which is the medical term that describes the ability to sense the orientation of your body in your environment
- Maybe a picky eater is actually only picky about the method by which the food is prepared
- Inspiration porn example: ‘He asked her to the prom even though she has Down’s syndrome.’ But should be just like it’s not cool if you say ‘He asked her to the prom even though she is Asian.’
Category: research
Lightbulb. Skin is an organ
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Wash my face once a day, every night. Don’t over wash and risk drying out the skin, causing it to produce more oil.
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Wash my feet every night before bed, slather with lotion
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Slather body lotion daily – moisturize, moisturize, moisturize
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Use sunscreen daily or at least before venturing outside anywhere
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Ask your GP to include a regular skin cancer check in your annual, or see a dermatologist. Some doctors recommend every year!
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Drink lots of water
MS and hot cocoa
Genial Gilenya
Caustic Copaxone
- Copaxone: About this medication
- Shared Solutions Financial Assistance Program
- The Copaxone channel on msnewschannel.com
MS or gout
1M U.S. MSers
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webpage MS Prevalence Background (NMSS)
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article Making Epidemiology Matter (Int’l J Epidem)
MS and the DMTs
- article Medications | NMSS
- video Guideline: Disease Modifying Therapies for Multiple Sclerosis | American Academy of Neurology
From my dad’s daughter
I love you, Dad! Happy Father’s Day and thanks for everything.

Hello? MS is still here
It’s March 2018. MS is still here. So I’m introducing it again in case you all forgot.
It's March 2018. MS is still here. And it still sucks. Like a vacuum hoovering away abilities. So I'm introducing it again in case you need a refresher.
Because March is recognized since 2003 as MS Awareness Month. It's orange bracelets and orange ribbons and proud walkers and swimmers as fundraisers.
But MS has been around since at least the 1860's. You can read about the history here.
And while the MS Society says that there are 400,000 people diagnosed with it in the US, everyone knows at least someone who has it. I think it was Montel Williams says it should be 1 million or more.
And that's just in the US. It is estimated to be 2.3 million worldwide.
Organizations
At this point, there are multiple MS associations in the U.S. alone that have information on the disease. Any would be pleased to take donations.
- One of the oldest and most well known is the National Multiple Sclerosis Society. Founded in New York in 1946 by the sister of a man diagnosed with the disease who simply placed a classified ad looking for others. It became a national, multi-chapter, non-profit organization and has subsequently become renowned worldwide. You may be familiar with it's annual MS walk-a-thons. Another place to donate is on the website here.
- Also there is The Multiple Sclerosis Association of America. Founded in 1970, it raises money by swimming for a cure. Or donate here.
- Or the Multiple Sclerosis Foundation. Or Can Do MS (formerly The Jimmie Heuga Center for Multiple Sclerosis founded in 1984)
For research there's the Consortium of Multiple Sclerosis Centers (CMSC), The North American Research Committee on Multiple Sclerosis (NARCOMS) and Americas Committee for Treatment and Research in Multiple Sclerosis (ATRIMS) to name a few.
I guess my point is that there are a lot of eyes on it, whether you are aware or not.
Why Donate
There's a good article demonstrating how to research charitable contributions here. Suffice it to say, there are better organizations than others, even better chapters of the same organization.
Bottom line is that this disease still needs more research. It has proven to be a troublesome, perplexing, messy puzzle.
And that research costs money.
So wear orange. Wave flags. And remind everyone you know: March is MS Awareness Month, but you can find reasons to give everyday.
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