Regarding CCSVI, please remember that opinions expressed on this post are my own.
“I’m melting! melting!”
The first time I experienced MS fatigue, it was exhaustion like I’d never known.
Go ask Alice…
From the moment I decided to start the injections, I was admitting to myself that I was willing to accept medication “on board” for my adult life.
Would I swap symptoms?
She has pain, scrambled cognition, and vision problems; I have bladder problems, poor hand-eye coordination, and decreasing mobility.
Lying awake in bed is my “thinking” position. So I began to consider what I’d do if I woke up one morning and was suddenly free of this disease.
My diagnosis in review
Would I have done anything more or differently years ago if I had known for sure that my health would decline?
My bladder vs. the diet test
keep thinking I can “cheat” sometimes with my food sensitivities, like you sometimes do when you are following a diet to lose weight. But I had another reminder that one, the diet is helping, and two, I can’t cheat. Sigh.
Ah, cheese is back!
On my way to acupuncture yesterday I stopped and had my food sensitivities rechecked. I am so happy to report that some of the things I’ve eliminated I’m no longer showing as sensitive to! Some of the things I’ve really missed and can now eat again (in rotation every 4 days or so) are salt, […]
I am still maintaining dietary restrictions from my food sensitivities. But I gradually started drinking coffee again because it smelled so good in the morning.
The incontinence spectrum
In the interest of full disclosure about what it’s like to be a person living with this disease, I have to confess my biggest shame: urinary incontinence.